HEALTH UPDATE: Official diagnosis: Pancreatic Acinar (ASSinar, lol) Cell Carcinoma involving Spleen. The pancreatic mass grew into my spleen. I misspoke early on when I claimed that a tumor was “on” my spleen. It is IN my spleen and didn’t even come from my spleen. Leave it to me to be off the charts weird. This is a very rare form of cancer. They have never seen a mass this big that hasn’t spread all over. The mass is too big to surgically remove. Cancer has grown into the vessels in the area complicating matters. The plan is to try chemo to reduce the size of the tumor. We need a miracle. I will have a port installed into my chest on Friday and the fun begins the following week with the strongest chemo they have for pancreatic cancer, once the port has healed. I will go to clinic for chemo every 14 days for 4 hours and will also take a pump home to do chemo for 46 hours. They will do a scan every 2 months to see if it’s working. Because it is so rare, we are searching for anyone that knows best how to treat this.Mayo clinic is at the top of our list and we will be making calls tomorrow morning. We appreciate your prayers. Please keep them coming as we will need them. Thank you for you patience as we just found out this news today.
More ramblings in case you choose to read on…..
Tom and I have fuzzy head tonight. It’s really quite surreal. I’m ready to fight. I believe in miracles. I’m also a realist so I’ve got a million things in my head that I want to do. My body won’t keep up. I have good days and bad days. My oncologist said I looked put together with nice hair (referring to how people don’t always look sick on the outside). Inside I wanted to go home and go to bed. My torso is so achy and just off. I hate the thought of eating. Mostly, I’m tired and that could be from the many emotions of the day. My oncologist says I might just start feeling better with the chemo. How do you like that? Sounds so ironic.
My family and friends are beyond amazing. I am so lucky to have a great support system. Holy cow! Everyone asks what they can do to help! I thank you all! Mostly we need prayers. Food is complicated at our house so we don’t need any meals or anything. Visits are wonderful, especially for Willow. We want to keep her in her normal routine but many afternoons that means hanging out with her mom and dad. So if any littles want to come by and play just let us know! Older folks too! Now that we finally have a plan, we will be working on figuring out what we need and will let you know if we need help. Right now we are just counting the blessings we have and praying for the miracle that just must come true!